HIV & Aging Links

Federal Government:

Administration for Community Living
All Americans—including people with disabilities and older adults—should be able to live at home with the supports they need, participating in communities that value their contributions. To help meet these needs, the U.S. Department of Health and Human Services (HHS) created a new organization, the Administration for Community Living (ACL).
http://acl.gov

Centers for Disease Control and Prevention
CDC works 24/7 to protect America from health, safety and security threats, both foreign and in the U.S. Whether diseases start at home or abroad, are chronic or acute, curable or preventable, human error or deliberate attack, CDC fights disease and supports communities and citizens to do the same.
www.cdc.gov

HRSA
The Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services, is the primary Federal agency for improving access to health care services for people who are uninsured, isolated or medically vulnerable.
http://www.hrsa.gov

National Guideline Clearinghouse (NGC)
National Guideline Clearinghouse
NGC is a comprehensive database of evidence-based clinical practice guidelines and related documents. NGC is an initiative of the Agency for Healthcare Research and Quality (AHRQ), U.S. Department of Health and Human Services. NGC was originally created by AHRQ in partnership with the American Medical Association and the American Association of Health Plans (now America’s Health Insurance Plans [AHIP]).
http://www.guideline.gov

National Institute on Aging
NIA, one of the 27 Institutes and Centers of NIH, leads the federal government in conducting and supporting research on aging and the health and well-being of older people. The Institute seeks to understand the nature of aging and the aging process, and diseases and conditions associated with growing older, in order to extend the healthy, active years of life.
http://www.nia.nih.gov

The Office of AIDS Research, (OAR)
The Office of AIDS Research (OAR), located within the NIH Office of the Director, coordinates the scientific, budgetary, legislative, and policy elements of NIH AIDS research. The NIH represents the largest and most significant public investment in AIDS research in the world. Our response to the epidemic requires a unique and complex multi-institute, multi-disciplinary, global research program. Perhaps no other disease so thoroughly transcends every area of clinical medicine and basic scientific investigation, crossing the boundaries of nearly every Institute and Center (IC). This diverse research portfolio demands an unprecedented level of scientific coordination and management of research funds to identify the highest priority areas of scientific opportunity, enhance collaboration, minimize duplication, and ensure that precious research dollars are invested effectively and efficiently. OAR sets the trans-NIH scientific priorities for this large and diverse program, which is conducted or supported by nearly every NIH Institute and Center.
http://www.oar.nih.gov

The Office of National AIDS Policy
The Office of National AIDS Policy (ONAP) is part of the White House Domestic Policy Council and is tasked with coordinating the continuing efforts of the government to reduce the number of HIV infections across the United States. The Office emphasizes prevention through wide-ranging education initiatives and helps to coordinate the care and treatment of citizens with HIV/AIDS.
http://www.whitehouse.gov

AIDSinfo Logo
AIDSinfo, a service of the U.S. Department of Health and Human Services (HHS), offers access to the latest, federally approved HIV/AIDS medical practice guidelines, HIV treatment and prevention clinical trials, and other research information for health care providers, researchers, people affected by HIV/AIDS, and the general public.

AIDSinfo services and staff cannot replace direct communication with your health care provider(s). The staff cannot respond to specific medical questions, offer medical advice, give second opinions, or make recommendations about specific therapies.
The AIDSinfo project is 100% federally funded. AIDSinfo neither allows advertising on our Web site nor endorses any company or products.

To learn more, please read the AIDSinfo brochure, which provides more information about our services and features and is available to download in a print-friendly format.

Advocacy, Policy, and Research

AARP
A nonprofit, nonpartisan membership organization that aims to enhance the quality of life for all people as they age by advocating for positive social change, conducting aging-related research, and connecting members with valuable information and services.
www.aarp.org

The ACLU HIV/AIDS Project
Uses impact litigation, public education and advocacy at the state and federal level to fight discrimination against people with HIV/AIDS.
http://www.aclu.org/hiv-aids

ACRIA (AIDS Community Research Initiative of America)
ACRIA studies the lives and needs of people with or at risk for HIV through its Behavioral Research Program; offers critical HIV healthcare education to HIV-positive people and their caregivers all around the world through its HIV Health Literacy Program; and provides a variety of consulting services (technical assistance, monitoring and evaluation, curriculum development, and web-based learning among them) to strengthen AIDS and other service organizations across the country, enabling those groups to better serve their own clients.  Additionally, through the ACRIA Center on HIV & Aging, the organization is recognized as an international authority on the emerging issue of older adults and HIV.
http://www.acria.org

AIDS United
Born out of the merger of the National AIDS Fund and AIDS Action in 2010, AIDS United’s mission is to end the AIDS epidemic within the United States.  We seek to fulfill our mission through strategic grantmaking, capacity building, and advocacy.

AIDS United’s grantmaking portfolio dates back to the founding of the National AIDS Fund in 1987.  For more than two decades, we have supported community-driven responses to the HIV epidemic around the country that reach the nation’s most disproportionately affected populations, including gay and bisexual men, communities of color, women, people living in the deep South and people living with HIV/AIDS. To date, our strategic grantmaking initiatives have directly funded more than $75 million to local communities, and have leveraged more than $100 million in additional investments for programs that include, but are not limited to, syringe access, access to care, capacity-building, HIV prevention and advocacy.
http://www.aidsunited.org

The AIDS Institute
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http://www.theaidsinstitute.org

AIDS Clinical Trials Group (ACTG)

Supports the largest network of expert clinical and translational investigators and therapeutic clinical trials units in the world, including sites in resource-limited countries, often serving as the major resource for HIV/AIDS research, treatment, care, and training/education in their communities.
https://actgnetwork.org/community-organization-links

AIDS Research Institute at University of California, San Francisco
Brings together hundreds of scientists and more than 50 programs from throughout the university and affiliated labs and institutions, and works in close collaboration with affected communities. Fosters innovative and integrated science to prevent, understand, treat, and someday cure HIV infection.
http://ari.ucsf.edu

amfAR, The Foundation for AIDS Research
Supports innovative research into improvement in HIV/AIDS prevention and treatment strategies and other programs ranging in scope from public policy to education (including medical education) to global research, education, and treatment initiatives.
http://www.amfar.org

Association of Nurses in AIDS Care (ANAC)

Promotes professional development for nurses working with People Living with HIV. Includes public policy and advocacy information and links to professional development resources and ANAC chapters/activities.
www.nursesinaidscare.org

Black AIDS Institute
Works to stop the AIDS pandemic in Black communities by engaging and mobilizing Black institutions and individuals in efforts to confront HIV. Interprets policies, conducts trainings, offers technical assistance, disseminates information and provides advocacy mobilization from an unapologetically Black point of view.
http://www.blackaids.org

CATIE
CATIE is Canada’s source for up-to-date, unbiased information about HIV and hepatitis C. This site connects people living with HIV or hepatitis C, at-risk communities, healthcare providers and community organizations with the knowledge, resources and expertise to reduce transmission and improve quality of life.
http://www.catie.ca/en/home

Center for AIDS Prevention Studies (CAPS)
Conducts research to prevent new HIV infections, improve health outcomes among those infected, and reduce disparities. Website includes links to past and current research and findings, model projects and curricula, survey instruments, outreach and evaluation manuals, and technical assistance.
http://www.caps.ucsf.edu

Center for Excellence in Transgender Health
Provides leadership, capacity building, professional training, policy advocacy, research development, and resources to increase access to culturally competent health care for transgender people in the United States.
http://transhealth.ucsf.edu

Center for HIV Educational Studies and Training (CHEST)

Conducts research on social and psychological factors associated with HIV transmission and the well being of those living with HIV, with an emphasis on the promotion of sexual health. Carries out formative research and works to disseminate study findings to community organizations serving persons with HIV and at risk for HIV.
http://www.chestnyc.org

Family Caregiver Alliance National Center on Caregiving

Provides a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a “one-stop shopping center for caregivers,” FCA provides links to education and training, research, on-line services, and more.
http://www.caregiver.org/caregiver/jsp/home.jsp

Gay & Lesbian Medical Association

Formerly known as the American Association of Physicians for Human Rights, GLMA was founded in 1981 with the mission of ensuring equality in health care for LGBT individuals and health care professionals. Site includes resources for patients, providers, and researchers, including a “Find a Provider” link.
http://www.glma.org

Gay Men’s Health Crisis (GMHC)
The world’s first and leading provider of HIV/AIDS prevention, care and advocacy. In addition to their comprehensive website, policy analyses, and newsletter, GMHC publishes informative reports including Growing Older With the Epidemic: Aging and HIV, released May 2010 and downloadable on their site.
http://www.gmhc.org

Gladstone Institutes
Gladstone’s mission is to unravel the basics of biology in order to better understand, prevent, treat and cure cardiovascular, viral and neurological conditions such as heart failure, HIV/AIDS and Alzheimer’s disease
http://gladstoneinstitutes.org

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Black or white, gay or straight, the face that most Americans imagine when they think about HIV/AIDS isn’t particularly wrinkled. Yet approximately one quarter of the people living with HIV in 2005 were 50 or older, and studies project that by 2015 more than half of all people living with HIV in the US will be over 50.
www.grayingofaids.org

Guttmacher Institute

Advances sexual and reproductive health in the US and worldwide through an interrelated program of social science research, policy analysis and public education designed to generate new ideas, encourage enlightened public debate and promote sound policy and program development.
http://www.guttmacher.org

The Harm Reduction Coalition (HRC)
Provides information about the principles and practical realities of harm reduction, including syringe access programs, overdose prevention, drug treatment information, and tips for providers on effectively caring for active substance users.
www.harmreduction.org

HIV InSite
A resource created by the University of California at San Francisco that provides up-to-date information on HIV/AIDS prevention, treatment, and policy.
http://hivinsite.ucsf.edu

Hospice Foundation of America (HFA)

Conducts programs of professional development, public education and information, research, publications and health policy issues, including programs to assist health care professionals and the general public coping personally or professionally with terminal illness, death, and the process of grief.
http://www.hospicefoundation.org

myhivclinic

 

My HIV Clinic
The International Association of Providers of AIDS Care (IAPAC) strives to ensure clinicians remain up-to-date with developments regarding the clinical management of HIV. myHIVclinic.org aims to do just that by educating clinicians about and supporting them in managing HIV comorbidities and promoting healthy aging with HIV.

The focus, design, and content of myHIVclinic.org is directed and approved by an international faculty comprised of IAPAC-affiliated clinician-experts who form the site’s Steering Committee. The work of the Steering Committee and the site’s Editorial Team is spearheaded by a Managing Editor – Benjamin Young, MD, PhD, IAPAC’s Vice President/Chief Medical Officer.
http://myhivclinic.org

Kaiser Family Foundation
A non-profit, private foundation that focuses on the major health care issues facing the US and the role of the US in global health policy. The site’s HIV/AIDS pages provide a wealth of helpful resources, including information-packed fact sheets, policy reports, survey data, and a user-friendly “Global HIV/AIDS timeline.”
http://www.kff.org/hivaids

Lambda Legal
A national organization committed to achieving full recognition of the civil rights of lesbians, gay men, bisexuals, transgender people and those with HIV through impact litigation, education and public policy work.
http://www.lambdalegal.org/help

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Let’s Kick ASS – AIDS Survivor Syndrome
Let’s Kick ASS—AIDS Survivor Syndrome is a national grassroots movement of long-term survivors dedicated to empowering individuals who lived through the first two decades of the AIDS epidemic to make the next 20 years the best they can be.
http://www.letskickass.org

National AIDS Treatment and Advocacy Project
NATAP is a New York State non-profit corporation with 501(c) 3 Federal tax-exempt status. Our mission is to educate individuals about HIV and Hepatitis treatments and to advocate on the behalf of all people living with HIV/AIDS and HCV. Our efforts in these areas are conducted on local, national, and international levels.
http://www.natap.org

National Alliance for Caregiving

A coalition of organizations focusing on issues of family caregiving. Conducts research and policy analysis, develops national programs, increases public awareness, and works to strengthen state and local caregiving coalitions. Includes links to brochures, podcasts, and Family Caregiving 101.
www.caregiving.org

National Alliance on Mental Illness (NAMI)
Works to improve the lives of those affected by mental illness through education programs and other resources for individuals, families, health care providers, and the general public; advocates on the state and national levels on behalf of people living with mental illness.
www.nami.org

National Black Gay Men’s Advocacy Coalition
Committed to improving the health and well-being of Black Gay Men through advocacy that is focused on research, policy, education and training.
http://www.nbgmac.org

National Council on Aging

Works with organizations across the US to help seniors find jobs and benefits, improve their health, live independently, and remain active in their communities. Coordinates strategic coalitions and multi-sector partnerships; mobilizes communities of organizations and leaders; and advocates to improve public policies.
http://www.ncoa.org

National Coalition for LGBT Health

Committed to improving the health and well-being of LGBT individuals through federal advocacy focused on research, policy, education, and training. Priority issues include increasing professional and cultural competencies of providers and others engaged in health and social service delivery to the LGBT population.
http://lgbthealth.webolutionary.com

National Hispanic Council on Aging

Works on the local and national levels to improve the quality of life for the Hispanic/Latino elderly, their families, and their communities. Focuses on the following program priorities: health promotion and disease prevention, financial security and civic engagement, policy, leadership development, education and housing.
http://www.nhcoa.org

National Institute of Allergy and Infectious Diseases (NIAID)

Conducts and supports basic and applied research to better understand, treat, and prevent infectious, immunologic, and allergic diseases, resulting in new therapies, vaccines, diagnostic tests, and other technologies. Includes links to a number of long-term cohort studies and HIV/AIDS Clinical Trials Networks.
http://www.niaid.nih.gov/about/organization/daids/Pages/default.aspx

National Institutes of Health Office of AIDS Research (OAR)
Coordinates the scientific, budgetary, legislative, and policy elements of the NIH AIDS research program. Sets scientific priorities, enhances collaboration, and ensures that research dollars are invested in the highest priority areas of scientific opportunity that will lead to new tools in the global fight against AIDS.
http://www.oar.nih.gov

National Institutes on Aging (NIA)

Part of the National Institutes of Health, NIA’s web site includes information for and about older people with HIV/AIDS in both English and Spanish.
http://www.nia.nih.gov/health/publication/hiv-aids-and-older-people

National Minority AIDS Council

A coalition of 3,000 community-based and AIDS service organizations working in communities of color nationwide. Develops leadership in communities of color through a variety of public policy education programs, national conferences, treatment and research programs and trainings, electronic and printed resource materials, and its website.
http://nmac.org

National Osteoporosis Foundation
The leading consumer and community-focused health organization dedicated to the prevention of osteoporosis and broken bones, the promotion of strong bones for life and the reduction of human suffering through programs of public and clinician awareness, education, advocacy and research.
http://www.nof.org

National Senior Citizens Law Center

A non-profit organization whose principal mission is to protect the rights of low-income older adults. Through advocacy, litigation, and the education and counseling of local advocates, seeks to ensure the health and economic security of those with limited income and resources, and access to the courts for all.
http://www.nsclc.org

New England Association on HIV over Fifty
Build understanding and support for infected or affected older people. Expand community conversations and activities to include older generations. More fully address the interplay of aging and disease.
http://hivoverfifty.org

New York Association of HIV Over Fifty
Formed to address issues related to HIV/AIDS and older adults, NYAHOF works to ensure that the concerns of persons over the age of fifty and their support networks are addressed, and to generate educational, programmatic, and policy initiatives in the field of aging.
http://www.nyahof.org/mission.htm

Older Women’s League (OWL)

A national grassroots membership organization that focuses solely on issues unique to women as they age, OWL strives to improve the status and quality of life for midlife and older women through research, education, and advocacy activities.
http://www.owl-national.org/Welcome.html

Paraprofessional Healthcare Institute (PHI)

Works to improve the lives of people who need home or residential care by improving the lives of the workers who provide that care so that both may live with dignity, respect and independence. Resources include educational and training materials, policy recommendations, and evaluation tools.
http://phinational.org

Project Inform

Advocates for a compassionate response to the HIV epidemic by government, academia, industry and community, and connects people living with HIV with information necessary to make informed health decisions. In English and Spanish.
http://projectinform.org

Services and Advocacy for Gay, Lesbian, Bisexual, and Transgender Elders (SAGE)

Addresses the gaps in sensitivities and services that often leave GLBT seniors under-served and can send them “back into the closet.” Website includes information on resources, policy and New York progams, with links to affiliates around the country.
www.sageusa.org

Sexuality Information and Education Center of the United States (SIECUS)

A recognized leader in the field of sexuality and sexuality education, SIECUS has published numerous books, journals, and resources for professionals, parents, and the public. Resources include SexEdLibrary, the most comprehensive online sex ed resource in the nation, and a bibliography on sex in middle and later life.
http://www.siecus.com/index.cfm

Substance Abuse and Mental Health Services Administration (SAMHSA)
Strives to reduce the impact of substance abuse and mental illness on America’s communities through grant and contract awards, data collection, and the provision of the most up-to-date information about behavioral health issues and prevention/treatment approaches to states, providers, communities and the general public.

The American Academy of HIV Medicine (AAHIVM)

The American Academy of HIV Medicine supports the HIV care provider and the profession by:

  • Providing continuing medical education;
  • Credentialing HIV Specialists™, HIV Experts™ and HIV Pharmacists™;
  • Providing practice  management information;
  • Advocating on behalf of the HIV care provider at the federal and state levels for issues relevant to clinical and professional  support;
  • Advancing healthcare resources for HIV-infected patients.

www.AAHIVM.org

The American Geriatrics Society (AGS)
is a not-for-profit organization of over 6,000 health professionals devoted to improving the health, independence and quality of life of all older people. The Society provides leadership to healthcare professionals, policy makers and the public by implementing and advocating for programs in patient care, research, professional and public education, and public policy.
http://www.americangeriatrics.org

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Treatment Action Group is an independent AIDS research and policy think tank fighting for better treatment, a vaccine, and a cure for AIDS.
www.treatmentactiongroup.org

Transgender Legal Defense and Education Fund (TLDEF)

Fights for equality for transgender people through public education, test-case litigation, direct legal services, community organizing and public policy efforts.
http://www.transgenderlegal.org

Veterans Aging Cohort Study (VACS)
A study of HIV-positive and a matched control group of HIV- negative veterans in care in the US built around the VA, the largest integrated health-care system and the largest single provider of HIV care in the nation. Examining the role of comorbid medical and mental health concerns in determining clinical outcomes in HIV infection.
http://vacohort.org/index.aspx

WebMD-logo
WebMD has created an organization that we believe fulfills the promise of health information on the Internet. We provide credible information, supportive communities, and in-depth reference material about health subjects that matter to you. We are a source for original and timely health information as well as material from well known content providers.
www.webmd.com/hiv-aids/features/hiv-and-aging

The Well Project

Develops resources to educate and support HIV-positive women, their caregivers, and their care providers. Informs research for new treatments, promotes better standards of care, increases awareness and education about women and HIV, and connects people in search of a trusted, supportive, and protected environment.
http://www.thewellproject.org/en_US

The White House Office of National AIDS Policy (ONAP)

The part of the White House Domestic Policy Council tasked with coordinating government efforts to reduce HIV infections in the US. Site includes links to the National HIV/AIDS Strategy and to ONAP’s blog on policy-related developments (including a recent meeting ONAP hosted on HIV/AIDS and Aging).
http://www.whitehouse.gov/administration/eop/onap

Women Organized to Respond to Life-Threatening Disease (WORLD)
Emphasizes peer-based advocacy and education. Programs include The Lotus Project, a national skills-building training for HIV-positive women interested in become peer advocates, and Positive Women’s Network, which aims to strengthen the impact that women living with HIV have on policy matters that impact their daily lives.
http://www.womenhiv.org

Books and Online Resources

Aging with HIV; A Gay Man’s Guide,  by James Masten 
With improvements in the treatment of HIV disease, gay men in great numbers are surviving-and thriving-into middle and older age. While increased longevity brings new hope, it also raises unanticipated challenges, particularly for gay men who never thought they would live this long: How do I deal with all the physical changes? Who can I rely on as I get older? Is a relationship still in the cards for me? What about sex? How should I prepare for old age? A one-of-a-kind guide for gay men aging with HIV, Aging with HIV offers an upbeat, down-to-earth approach for adapting to change, whether driven by age, AIDS, or both. Psychotherapist James Masten and physician James Schmidtberger shed light on the many common assumptions and fears of aging with HIV. Aging with HIV provides concrete solutions for facing midlife with a positive outlook, offering a wealth of advice for breaking unhealthy habits and coping mechanisms. The book describes the nine changes common to gay men as they age with HIV, discusses the four challenges of aging, and offers a unique ten-step path to optimal aging with HIV, helping the reader to tailor the book’s suggestions to the realities of their lives. Woven throughout the book are first-person narratives from men who recount what worked-and did not work-for them. In addition, Rapid Research, Fast Fact, and Self-Reflection boxes highlight the latest research and challenge readers to take stock of the present-and plan for the future. An invaluable tool to keep handy and to refer to often, Aging with HIV is an inviting, confident companion to navigating midlife and beyond with HIV.
http://www.amazon.com/Aging-HIV-Gay-Mans-Guide/dp/0199740585

Nursing Home Abuse
The mission at nursinghomeabuseguide.org is to provide the public with accurate and up to date information on the many aspects of nursing home injury and abuse. The team at nursinghomeabuseguide.org strives to provide a comprehensive free resource for the public to learn more about nursing home abuse and the actions they can take to protect a loved one.
http://www.nursinghomeabuseguide.org